Focus Areas

Makayla Pike, granddaughter of Paul and Sue Rosenau

Krabbe Disease

Krabbe disease is a rare, inherited degenerative disorder of the central and peripheral nervous systems. Krabbe disease is one of a group of genetic disorders called the leukodystrophies.

Cystic fibrosis patient receiving vest treatment

Cystic Fibrosis

Cystic fibrosis is a genetic disease that causes a thick, sticky mucus to build up in the lungs, digestive tract, and other areas of the body. It is one of the most common chronic lung diseases in children and young adults.

Newborn screening: blood sample taken from baby's heel

Newborn Screening

Newborn Screening is a simple test to identify babies who may have serious medical conditions. Most babies should get their first newborn screen done before going home from the hospital or birth center, ideally between 24 and 48 hours of age.

The Legacy of Angels Foundation is a private family 501 (c) (3) organization co-founded by Paul and Sue Rosenau in 2008. The foundation was created in an effort to fund curative research for two genetic disorders; Krabbe's and Cystic Fibrosis. These two genetic disorders have impacted the lives of Paul, Sue, and their immediate family. Each day, the board of TLOAF works to provide education, fund research, and participate in advocacy initiatives at local and national levels for both genetic disorders. The short term answer is newborn screening which is currently being done with Cystic Fibrosis but Krabbe's disease needs to be added to the panel nationwide. Newborn screening provides optimal health and wellbeing or insurance for living life without detectable genetic diseases. The long term goal is a cure for both Cystic Fibrosis and Krabbe's disease in this lifetime.