The Legacy of Angels Foundation announces the dates of the 2019 Krabbe Translational Research Network (KTRN) meeting; May 29th-31st in Minneapolis, MN.  The meeting will take place at the McNamara Alumni Center located on the University of Minnesota campus.  This prestigious venue has received numerous awards for its high-tech facility and meeting space. 

Prior to the passing of the late, Sue Rosenau, the COO of TLOAF, Sue worked diligently with Stacy Pike-Langenfeld to ensure the leaders in the clinical and investigative space of Krabbe disease collaborate, share information and resources as well as, engage in formal and informal networking at the Krabbe Translational Research Network meeting (KTRN).  For the 2019 meeting, Sue’s vision for the KTRN revolved around the foundation facilitating the meeting in conjunction with rare disease experts in the leukodystrophy space. Dr. Maria Escolar has agreed to co-chair the KTRN Steering Committee with Stacy Pike-Langenfeld, Director of Programs and Administration for TLOAF.  Dr. Maria Escolar and Stacy will work with 8 other committee members to facilitate the meeting and program. 

The KTRN Steering Committee will utilize the Gordon Research Conference (GRC) model to aid in selecting individuals with research projects or advances in therapeutic developments in Krabbe disease to present.  Interested individuals must sign and submit the Abstract Agreement Form along with the formal abstract (provided below).